Aaaaaannnnnd we are outta here! Thanks for being a place of healing, Transplant House, but we are headed home! A huge thanks to Roger, for being here bright and early with a van to get us home in one trip.
We were welcomed home by my very own lovelies dawned in purple, holding purple plants and revealing an amazing sign! This is the most beautiful sight I have seen in months. Of all of the miracles I have witnessed, the thing that made me happiest was pulling up to my kiddos and my sister and knowing I was here to stay this time.
I am still going to UW three times per week to check in, have labs done, chest xrays, etc etc etc. After this week that will be reduced to being seen every other week. I will be able to do some follow ups with my primary care provider. I can also have labs done at the clinic or hospital rather than drive all the way to UW to have them drawn. Today was my last blood draw as a Seattle resident. I am headed back to Sequim TOMORROW! I can't wait to be home!
I've got some amazing news! Today has been a really good day! First of all, I've been struggling with weight loss and was told two weeks ago if I lose any more they would push for a feeding tube to be placed again. If you've never had a feeding tube... lemme tell ya, it is NO fun. But today I had several appointments and I managed to put on four pounds since that visit! Feeding tube avoided for now!
Second update is I got the official clearance from both the lung and liver teams to MOVE HOME! I've remained stable, my lung functions are even continuing to improve. My liver is still super wonky but stable for now. So they feel okay with me going home to wait for the next liver transplant. I cannot wait to be home with my family again! So, watch out Sequim, I'll be home on Saturday! Woot woot!
Mom and I made a trip to Sequim for an appointment and to get our Covid vaccines. It was a super long day so my sister and Scotty hooked us up with rooms at the 7 Cedars Resort. Holy cats, do we feel spoiled! What a beautiful resort! We both slept super hard, best sleep I've had in months. Thankful we have been able to see a few of our peeps while we are here. It is hard to head back to Seattle but I am grateful we were able to spend some time in Sequim. Hope to be back at the end of the month!
I also got to see my pupper for the first time in a few months - she is just as perfect as I recalled. :) AND we got to swing by Ginnie's house for a social distance visit. It is so painful to not be able to hug people now because of Covid. But we are being good and playing it safe, lots of distance, masks and NO touching each other. Someday we will get to do those things again but for now it was beautiful just to be in the presence of one of my favorite warriors. She has lifted me up, carried me, prayed with me, cried with me, laughed with me. It was wonderful to see her smiling face in person.
Mom and I have discovered WA Park Arboretum, super close to the apartment. Beautiful trails, not a lot of people and easy trails for my walker. A great way to practice my walking and getting fresh air!
Happy #MissyMondays from your warrior and the MOMMA! Hope 2021 is treating everyone well so far. I've got several appointments at UW tomorrow and hope to have a bright and uplifting update by the evening. Please pray for good labs and continued healing! Check back in tomorrow!
Staying at the Transplant House means we can have visitors, a huge change from hospital rules! Of course we take every possible precaution to keep everyone safe. Short visits, masks, distancing and most of the time spent outside. Weekly tests for COVID-19 are done and so far anyone that has come to visit gets tested and quarantines ahead of time. Such a strange time we live in! But so worth the extra effort, it brings me so much joy to see the people I love in the flesh!