I have a huge TEAM of different providers, nurses, medical assistants, OT, PT, counselors and many others working tirelessly to get me well enough to go home and continue to heal. Jason, the physical therapist I was able to work with was phenomenal. He radiates kindness, compassion, patience... and he loves his husky pupper so obviously we bonded over being dog lovers.
PT went really well today, I am learning more and more about tuning in to my body, knowing when to rest, setting realistic goals, etc. I managed not just a walk down the hallway but totally dominated the stairs too! Well, it is 4 steps with hand rails and it was a lot of effort. BUT. I did it. And lived to tell the tale. Keep those positive thoughts coming and keep the faith!
I have the most amazing woman from the lab that comes up suuuuuper early every morning and she is SO talented she once drew my blood without even waking me up! She is so soft spoken and kind and I feel a special bond with her!
Great Scott! What can possibly be said about this guy? He radiates patience and kindness with a side of sass. He always stayed calm, explained things thoroughly and made sure I understood everything. Cherry on top? Best sense of humor and he is a riot to be around. I don't think he'd ever admit it but I also have a suspicion he pulled a string or two to get me into that ICU room with a view!
By the Grace of God, I have had some really amazing caretakers during my stay here at UW! Jacob's kindness and calm spirit has been both comforting and healing. I don't know if it is in our future but I sure do hope he will be part of my care Team now and in the future!
DO YOU BELIEVE IN MIRACLES?
My fellow WARRIORS! Are you ready for your minds to be blown!? With the love, support, faith, brilliant minds, top notch medical care and the GRACE OF GOD, you are looking at a living, breathing miracle. Several days ago I was given weeks to live, no more than six months. And to plan on saying goodbye from UW because they would not be able to safely get me home to pass peacefully there. This morning a team of doctors came into my room and asked if I was ready to go home and continue my healing journey from the comfort of my own home, surrounded with the people I love.
Read that again. I'M GOING HOME TODAY!!!
Still a long road ahead. But this blessing is what we needed. I will give more details later but for now, excuse me while I pack my bags and make my way HOME!
Aaaaand..... I'm outta here!
My ride is here! Waiting for pharmacy, remove IV, final run down of discharge plans and I'll be on my way back home in Sequim. Couldn't be happier! Next step is getting strong enough at home to complete the necessary outpatient tests for double lung and liver transplant. Checking those boxes! Hallelujah!
Home Sweet Home.....
My amazing family worked their tooshies off today, making sure everything was ready for me to be home and focus on healing. My bedroom and bathroom have been decluttered, scrubbed, beautified, sanitized and filled with love. Now I get to drift off to sleep in my own home, in my very own bed, free from IVs, pulse ox machine, BP cuff, all the beeps, bells and whistles. Looking forward to a great night of sleep, I have so much to be thankful for.
Nighty Night from Team Missy HQ! Tomorrow is a new day and it is going to be beautiful!
I got the best visitor today! I can't say enough about my friend Erin. Our kids have basically grown up together and we managed to stay sane as single moms because we had each other. She has been through thick and thin with me. She knows my deepest, darkest secrets and she loves me anyway. :) She was there when I was sick at home. She sent me off in the ambulance and hugged my momma tight to ease the pain of watching us take off down the driveway as she waved goodbye. She came to visit me in UW multiple times and always brings the best treats and puts a smile on my face. She is one of my strongest warriors and I love her.
Everyone that steps foot into my room at UW (one of the many I have been assigned) comments on how peaceful it feels. Friends and family made sure I had some of 'home' with me and decorated my rooms with special items from home - most importantly our family photos. It eases the loneliness some when I begin to miss everyone at home, especially my kiddos. But with that being said, I will also mention that I am aware THIS is where I need to be. I need to heal and collaborate with my providers to find a plan that will give me the gift of a second chance at life. So this is where I belong, for now.
Whoa! Look who got to stand up and walk for a minute today!? I managed to get up and take a few steps with the support of my care team. And lots of prayers! I felt like how Bambi feels when he steps on ice for the first time with his wobbly legs! But I will get stronger! Next up: HALLWAY SPRINTS
And yep, you guessed it! My favorite part of today? I GOT TO TAKE A SHOWER!!!! Wet wipes and dry shampoo can only get you so far. It was quite the production but we managed to get me squeaky clean and wrapped back up in bed like we were a bunch of professionals! MISSY TACO FOR THE WIN!
The episode that landed me in the ICU was powerful and frightening. But the most important take away from that was when that happened, my loved ones rushed to be with me. Having them there to support me, guide me to clarity and feeling their love is something I will be thankful for the rest of my life. The power of love, family, support, prayer, hope and faith... these people have lifted me up and I will spend my remaining time finding ways to show them how humbled I am to have been blessed with them by my side!
I can ALWAYS count on Steve!
There are just some people that you connect with and will remain in your life, always. Steve is one of those people for me. I love ya Scuba Steve!
I continue to be blown away with how many people out there are pulling for me! All of the positivity, faith, prayers and support from the amazing people in my life is working miracles. I got a two-for-one visit from some dear friends that have been in my life since I was a troublemaking teenager! Thank you for the visit. It was nice to catch up, reminisce about the old times, had some good belly laughs and I may or may not have cried. Only a little. Love you guys!
I have met some amazing, caring people!
Everyone here at UW is constantly blowing me away with their kindness and compassion. From the doctors to the nurses to the housekeepers - every person I have met goes above and beyond. I know I am in the right place!
I know the best, most beautiful people. A combination of sleep deprivation, anxiety, lack of oxygen caused a touch of psychosis and I truly felt I needed to see people I love to say goodbye and squeeze them. And no questions asked, these angels flew to my side to lift me up. So blessed.
Coming directly to you from the Princess herself! I am blowing their minds over here with how much improvement I have had in the last day. I've gone from accepting that I was passing on and saying goodbye to loved ones to feeling better than I have in months. I was very gently told that with the multiple diseases my body is fighting the expectancy was weeks but likely no more than six months. And they would not be able to let me spend my final time anywhere but in the ICU. The team this morning has renewed hope I may be able to go home rather than be in a hospital for my final days at home and continue towards the top of the transplant list for double lung/liver. Obviously still so much healing and recovering to be done and it will be a long, difficult road.
I want you all to know that I would not be here without the love, support, kindness, faith and prayers to heal me. Please keep those happy thoughts, positive vibes andgood juju coming! We've got this!