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Finally - My Very Last Appointment!

9/23/2020

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I am so thankful that the board, doctors and surgeons all agreed to list me earlier this month!  Technically I had one final appointment to get through but they didn't wait for me to complete it because it was just something I had to check off and I think I have already proven to everyone on my care team that I am capable of following direction and living my life as healthy as possible, not just now but after transplant.  Anyhow, I did have my final appointment that had been sitting on my checklist that I got to officially check off.  This appointment was with a psychiatrist and fortunately they were able to set up a Telemed visit so we didn't have to make another trip to Seattle because those trips truly wear me out!  The appointment went as I expected it would, no red flags, my mind appears to be ready to take on the huge undertaking of a triple organ transplant.  Officially.  The psychiatrist even said so.  

I also had a home health visit today and although I feel like I may be getting better, there was a little bit of concern over how long it is taking me to recover when I move from my bedroom to the living room for my nurse visit.  But I have all sorts of tricks up my sleeve to bring my levels  and up and after some time everyone was satisfied with where I was hanging out, between 85% - 88% on 15lpm.  I can go all the way up to 25 lpm if I can't bring things up on my own at 15 but it isn't very comfortable for my nasal passage and airway so I avoid that if I can.  

All in all, nothing huge to report.  Oh, except when I find out who referred me to Marriott hotels we are going to have words.  I am getting SO MANY junk calls from them and some are from a 206 are code so it makes my heart jump all the way to the back of my throat, thinking it is UW calling me in for surgery.  Soooo....  thanks a lot, whoever you are!  Haha!
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    A mother.  A friend.  A warrior.

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