I am so thankful that the board, doctors and surgeons all agreed to list me earlier this month! Technically I had one final appointment to get through but they didn't wait for me to complete it because it was just something I had to check off and I think I have already proven to everyone on my care team that I am capable of following direction and living my life as healthy as possible, not just now but after transplant. Anyhow, I did have my final appointment that had been sitting on my checklist that I got to officially check off. This appointment was with a psychiatrist and fortunately they were able to set up a Telemed visit so we didn't have to make another trip to Seattle because those trips truly wear me out! The appointment went as I expected it would, no red flags, my mind appears to be ready to take on the huge undertaking of a triple organ transplant. Officially. The psychiatrist even said so.
I also had a home health visit today and although I feel like I may be getting better, there was a little bit of concern over how long it is taking me to recover when I move from my bedroom to the living room for my nurse visit. But I have all sorts of tricks up my sleeve to bring my levels and up and after some time everyone was satisfied with where I was hanging out, between 85% - 88% on 15lpm. I can go all the way up to 25 lpm if I can't bring things up on my own at 15 but it isn't very comfortable for my nasal passage and airway so I avoid that if I can. All in all, nothing huge to report. Oh, except when I find out who referred me to Marriott hotels we are going to have words. I am getting SO MANY junk calls from them and some are from a 206 are code so it makes my heart jump all the way to the back of my throat, thinking it is UW calling me in for surgery. Soooo.... thanks a lot, whoever you are! Haha!
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AuthorA mother. A friend. A warrior. Archives
October 2020
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