A shout out to my WARRIORS this evening! Can you believe the roller coaster ride we have been on for the last two months!? That's right. Today is my two month 'LungLiverSary'. Celebrating a second chance at life because of the selfless act of a donor that never knew me but gave such a beautiful gift. I celebrate them and pray for comfort for their loved ones, hoping they know what this means to myself and everyone that has supported me.
While I'm here I thought I'd give a quick update myself. I am so thankful to Ginnie for posting as much as possible, I still struggle with some of my fine motor skills (texting, typing, writing included) and they keep me really busy so updates are a bit difficult to do on my own. But please know I do check in all day long and your uplifting and encouraging words keep me going and give me the strength I need to fight even harder to get home. I can't thank you all enough!
Today is the best I've felt in a long time! They removed the final chest drain today, which means I am well on my way back to inpatient rehab soon! Removal of the drains means less pain and more mobility so I can really get cracking on gaining muscle to get through the next big surgery. I'll stay put in this room for another day or two to make sure everything stays medically stable and allow a little respite before finding an open bed in rehab.
The next hurdle will be the liver transplant. The timing of that is just really undetermined for a lot of reasons. The providers here have applied for and been denied any exceptions to have points added to my MELD score, so although I'm listed, I am low priority according to their system. But my Team here will continue to appeal and jump through any hoops to get me moved up the list. Hopefully we will know more on Monday. And I have faith my Team and by the grace of God it will get sorted out and I will be awarded the points I need to be moved up the list. I'm keeping my focus on the finish line and not on the possible hang ups, so my plan is to just work harder than ever to be as strong as possible in order to make recovery from the next transplant smoother than the first one.
Warriors, I would not be here without you and your faith in my success. There isn't another person in this world that is more humbled, thankful and blessed by the miracles that have revealed themselves over the past year and especially these last couple of months. Thank you for walking this journey with me. I can't wait to be back home and really start living my life! Never lose hope! And keep lifting each other up and inspiring each other. Love you all!