I was told today that I will in fact be going home rather than be transferred to UW. Hallelujah! I was very careful in my packing (not too fast because any slight movement drops my levels and sets off their fun alarms) and got ready for momma to pick me up. I will need to follow up with both Dr. Crim and Dr. Raghu next week. I have this little shimmer of hope that this hospitalization will be the spark that really gets the ball rolling towards transplant. Waiting for weeks or months for appointments just to get listed has been a battle for me from day one and has been probably the most frustrating part of all of this. SO. More prayers that this will get them to give me appointments sooner due to my continued decline in health! Photos below are of me finally breaking out of the hospital and all smiles knowing I get to sleep in my own bed surrounded by my family!
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AuthorA mother. A friend. A warrior. Archives
October 2020
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